This blog is about Emmalin's struggles and triumphs living with the CDKL5 gene deficiency, early infantile epileptic encephalopathy. We will also blog a little about what challenges and joys we have had as her parents. God is SO good and we feel so blessed that He chose us to be Emmalin's parents! This is our story...
Emmalin Age: 7.5
Tuesday, December 9, 2014
A House Visit From Santa
Halloween 2014

Sorry I'm a little late on posting this, but Emmalin was Strawberry Shortcake for Halloween this year. We spread her hair red and put sparkles in it, dressed her up and took her out. To say the least she WAS NOT a fan of getting her hair sprayed, but she looked SO cute!! It was a good night :)
God is good!!
- Posted using BlogPress from my iPhone
Happy 96th Birthday Grandma Ruth

Although we were a day late on getting there to visit, my Grandma Ruth turned 96 on December 1st. She is SUCH an amazing woman!! I am SO blessed to be able to call her my grandma!! I love her SO much!! Happy 96th birthday Grandma Ruth!! Love you!!
God is SO good!!
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| There are 90 YEARS between my grandma and Emmalin :) |
- Posted using BlogPress from my iPhone
New Wheelchair
Emmalin playing with her new toy :)
We found this toy on a local Facebook garage sale site and it is now Emmalins favorite toy! Who knew o should be looking in the Mega Block section for toys for Emmalin?
- Posted using BlogPress from my iPhone
Tuesday, September 23, 2014
Working On Walking
Here is a video of Emmalin today at therapy working on walking. Her hips are weak and so that's why her therapist is having to help lift her leg and then Emmalin "kicks" on her own to take the step. Working on this is VERY hard for her, but I wanted to show you all one of the MANY things she works SO hard on at therapy. She is continuing to do well! GOD IS GOOD!
Baseball In Action (Emmalin "running" the bases at her game last night - Monday September 22nd 2014)
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