Emmalin Age: 7.5

Emmalin Age: 7.5

Monday, October 26, 2015

Finishing Up the 3rd Week of Intensive Therapy

Well, the entire week once Emmalin was sick was hard, but she still worked.  Some days were harder than others and Friday was the hardest.
 I was SO proud of her and SO impressed by how much she was still able to do while not feeling well.  We are hook beg for a sock free week next week!  

God is good!

Wednesday, October 21, 2015

Beginning of the 3rd Week of the Intensive Therapy in Columbia

Monday went well, but I noticed Emmalin was starting to sneeze a lot.  As much as I didn't want it to be true, I knew that meant Emmalin was getting a cold.  And as I suspected, by Monday night, Emmalin had a cold (yes, she gets "full blown" sick that quick).  The great news is that it doesn't seem to be a cold that is going to drop her pulse ox and make her have to be hospitalized, but I still HATE that she has got sick halfway through this   Intensive!
 I was unsure of what today was going to hold for Emmalin since she now had a cold, and I even thought about canceling her morning so she could sleep in... But Emmalin woke up this AM in time to go to therapy and although you could tell she didn't feel the best, I decided to at least go give it a try.  You see, normally I would have just kept her home today, but with us being here for the intensive I wanted to at least try becaus we just don't get the opportunity to do intensive therapies very often!  At the morning session, we ended up cutting it short because Emmalin just didn't seem to be feeling great.  But  after resting we came back to try the afternoon session.  I'm SO glad we did because even though you could tell Emmalin wasn't 100%, she still dos great!! I'm SO proud of her for how hard she has been working and continues to work!  She is truly amazing!  

The picture is Emmalin working today in the afternoon PT session.

God is good!

Intensive Therapy in Columbia is Halfway Over


We are officially at the halfway mark of the intensive therapy.  Emmalin has continued to work hard and we are starting to see some progress.  
Emmalin seeks to be able to hold her head up for about 15 seconds instead of 3-5 seconds, when she reaches for a toy it seems to be with a little more control, and it seems to be a bit easier for her to move her head to the left when trying to hit her switches.  We are grateful for all of her progress and look forward to seeing what the next 2 weeks hold!  

The pictures are a couple pictures from the past 2 weeks :)

God is good!


Monday, October 12, 2015

1st Week Done

The first week went well!  She worked SO hard and I was SO proud of her!!  We mainly worked on turning her head to the left more consistently in the OT intensive and then we mainly wines in head control
in the PT intensive.
Here are some pictures of her working this week.  We are so grateful for this opportunity and look forward to seeing how week 2 goes!

God is good!

Monday, October 5, 2015

First day of Columbia Intensive Therapy Sessions

Today Emmalin had her first day of both intensive therapies.  She did great!  She was VERY tired by the end of the day, but they were great to give her breaks when she needed it.  I am SO proud of her and SO grateful she has been given this amazing opportunity to do these intensives!!  I'm looking forward to seeing how the next four weeks will go!!

God is Good!

These pictures are of Emmalin in the therasuit, which is something she wears during the entire PT intensive therapy session. 



Sunday, October 4, 2015

We made it to Columbia!

Tomorrow Emmalin starts her intensive therapy here in Columbia. I am nervous about how she is going to do and also excited about the strength she could possibly gain.  I will keep you posted!!

God is good!

Here is a picture of our "home" for the next 4 weeks :)


Friday, October 2, 2015

Journey of Hope Benefit on October 17th!!

Don't miss the benefit that my sister is having for Emmalin this month!  Emmalin and I will be coming back from Columbia for it (and then going right back).  I hope to see you there!


Gearing Up For the Columbia Intensive

It's just a couple of days before we (me and Emmalin) will be leaving to go to Columbia for Emmalin's intensive therapy sessions at the Children's Therapy Center.  It will be a chance for Emmalin to work on head and trunk control in the PT intensive.  As far as the OT intensive, we will be working on one of 2 things, activating her switches with her head  and with more consistency and efficiency (the left side is VERY hard for her) or reaching out for toys with more control and consistency (and other things) and holding things in her hands.  Yes, I realize that activating switches



and reaching for things are completely different things, but I am a little worried that working with switches (with her head) may be too much since Emmalin will be working on head and trunk control in the afternoon.  I would LOVE for Emmalin to get to work on activating her switches for more consistency and efficiency.  It would benefit her for the augmentative communication device that we are close to ordering (because she activates that by left and right candy corn proximity switches), it would help her when she is using her switches to play her games on her iPad, and it would also help her for when she gets to work more with the power wheelchair (because she moves the chair around by proximity switches on her head rest).  All of these things will help Emmalin have more of a "voice" and be able to interact more with other people (which is amazing).  But as I said, I am wondering if it will be too much for her, so if this is the case, I will ask to see if we can work on building her arm strength up so Emmalin could have more control when reaching for objects.  I would hope to also work on holding toys (and other things) in her hands so that maybe Emmalin might realize that it can be fun to use her hands to play with things (and even throw and hit things for that matter - ha).  Emmalin has never discovered how her hands can help her interact with everything in a completely different way instead of just being able to look at it or hit it (although I am VERY grateful for what she can do)! 
  So when we get to the intensive Monday morning, we will see what we end up focusing on.  You see, up until just a week ago we were headed to Columbia for just the OT Intensive.  At the last minute someone dropped out of the PT Intensive program in October and thats how Emmalin had the opportunity to do it in addition to the OT intensive while we are up there now too.  Yes, I am worried about it being too much for Emmalin (doing both intensives at the same time), but that's another reason why I am trying to focus on 2 different things.  

In case some of you don't know what all an intensive therapy session entails, it is 3 weeks (actually 4 weeks in our case) of 3 hours of therapy each day, 5 days a week (in a row).  Emmalin will actually do the OT in the morning for 2 hours and then the PT in the afternoon for 3 hours (with a 2 hour break between them).  The idea is that by  having the chance to consistently work on 1 thing the entire time, a person has the chance to possibly gain as much as they would in 6 months within those 3 weeks.  

We are hoping that Emmalin will make great strides with her head control while we are here.  Any gains will be HUGE and we are SO grateful for this opportunity for her to do the intensives!  

I have to say, as excited as I am to go to Columbia, when it has come to getting ready for this trip and packing everything that we are going to need for this trip, I have not been so excited to get all of it packed!  I quickly realized that packing for an entire month is COMPLETELY different than any other thing I have ever packed for in the past!  Normally it's me packing for a down and back trip to St. Louis to see doctors or a couple nights in St. Louis for some back to back doctor visits, or a hospital stay...but packing for a month...it's been crazy thinking about all of the different things that I need for Emmalin when we are staying some place for that long.  You can normally get by with not having a lot of things when it's just for a couple days, but not for a month!  We are having to bring her bath chair, a hand held water nozzle for the shower, her IV pole for her feeding tube pump (and feeding supplies), her VEST machine incase she gets sick again (because Emmalin is getting over a cold right now), her suction machine (and all of those supplies), diapers for a month, wipes, a months supply of food (which is all in 8 ounce bottles of liquid - that she has 5 of in a day), all of her therapy equipment, all her medications, her pulse ox, and a whole lot more!  My mom gave me the idea of putting it all in those tupperware bins, and I am SO glad that my mom came up with that because it has been by saving grace!  I have been able to fit a lot in each bin and even though I have filled up a lot of them, they are all organized and that will make it easier for me once we get to Columbia!



Don't get me wrong, I am in NO WAY complaining about all of the packing, (as I said) we are SO grateful for this opportunity for Emmalin to gain some strength, I just didn't realize how much packing was going to need to take place.  Slowly but surely I am getting it all done and one way or another Emmalin and I will be heading to Columbia on Sunday to start this amazing adventure!

I'll be posting updates, pictures, and some videos (hopefully) as we go through each week (so keeping checking back).  

God is Good!

Oh.. and the pictures are some of what I took for Emmalin's benefit (we needed updates photos).  I hadn't posted them on here yet, and so I decided I might as well with this post.

Monday, September 14, 2015

Miracle League Fall 2015

Today was the first day of the fall baseball season at the Miracle League Field! This is actually Emmalin's 3rd season to support. As always, Emmalin loved it and we are SO grateful she had this amazing opportunity to play baseball!! It is something that I never thought would be possible for Emmalin and honestly I was surprised by how much she likes it! We are SO grateful for a of the individual that come together to make this possible for all of these amazing individuals!! Here are some pictures of her tonight (first game of the season).

Oh and those 2 ladies are were our buddies tonight. Each player gets buddies to play with them each game to make sure they are safe and have fun!

God is Good!




























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Results of Power Wheelchair Trial

Last Thursday we officially finished the power wheelchair trial. How did it go? Well, Emmalin DEFINITELY has a long way to go when it comes to learning the directions. The most amazing part of it for me was the fact that while Emmalin was in the power wheelchair, she would keep her head up about 95% of the time (and maybe even a little more than that). Yes, she did have her leg braces and benik vest on (the pink thing you see on her in the pictures and videos), but the fact that she would keep her head up for as long as she would at one time was amazing. She would wear out after about 40 minutes or so and that's great for her! You see normally when Emmalin is in her wheelchair it is a battle (a lot of the time) between her and the person pushing get wheelchair for her to keep her head up. She normally drops it down and I (or whoever) are constantly telling her to put it back up. Don't get me wrong, sometimes she does great with keeping her head up, but there are a lot of times Emmalin decided she wants to hang her head.

So going back to the trial, the fact that Emmalin will keep her head up for as long as she does is huge! We think the fact that she is moving the chair is motivating for her to keep it up. And if she ends up getting the chair, we would work on building up her tolerance from 40 minutes.
The other huge reason it's a big deal that she is keeping her head up for as long as she is (at one time), is that the longer she can keep her head up the stronger it is going to get. The stronger her head gets puts her at a less of a risk for respiratory issues (including aspiration).

They way I look at it, the power wheelchair is a win win situation if we end up getting it. "Worse case scenario" (which really would be a "worse case" at all in my opinion), we continue to work with Emmalin 4-5 days a week and she continues to build up her head strength (which puts her at less of a risk for respiratory issues) and she continues to work on learning her directions. "Best case scenario", this chair ends up being her main chair and main way moving around (and all by herself - which is huge).

We haven't touched back with St Louis since the trial has stopped, so nothing has office been decided, but I will keep you posted!

God is good!


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Friday, September 4, 2015

Day 5 - Final Day of Wheelchair Trial

Today went a little better than yesterday. They are having us bring home the chair to practice with until next Thursday. I think it will be good to practice with Emmalins vision teacher and other therapists back at home (because it wi be different environments and different people working with her).

We headed back today and I think it's safe to say that both of us are glad to be back and sleeping in our own bed! Again, I am SO grateful Emmalin had the opportunity to have this amazing experience! I think the greatest thing that has come out of the trial (at least that we have noticed so far), is that while Emmalin was working in the power wheelchair she has continually kept her head up (at least 98% of the time). In her other chair Emmalin (as of now) hangs her head about 45% of the time she is in her chair. By having the increase time of Emmalin keeping her head in the upright position, it puts her at a smaller risk for respiratory issues (including aspirating). We have found that it seems to be motivation for her to keep her head up so that Emmalin can maneuver her power chair. This is HUGE!

Now that we are home, we will continue working very hard to give her a chance to co to use to get familiar with the chair and how to maneuver it in her natural surroundings. Once the power chair is picked up, we will reevaluate the situation from there and see how things are going.

Below is a picture of me and my baby girl cuddling. Nothing beers cuddling with Emmalin!

God is good!




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Thursday, September 3, 2015

Day 4 of the wheelchair trial

Honestly, today didn't go as well as I was hoping for... Emmalin wouldn't follow directions and just didn't seem to want to work today.

I did t get a picture of Emmalin and her amazing OT Melanie Wood while they were working today.

Hoping tomorrow goes better!



God is Great!


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Wednesday, September 2, 2015

Day 3 of the Power Wheelchair Trial


This is a video of Emmalin working on stopping. She can stop 2 ways (and we are trying to teach her both). 1 way of stopping is by tucking her chin and the other way is by adjusting her head. She is always very serious when she is working hard driving the wheelchair (as you can see in her face). We will be bringing the chair home with us on Friday and returning it on the 17th of this month. We are excited and incredibly grateful we have been given this opportunity.

Our goal will be to continue getting familiar with the chair and starting to build up the amount of time she works in the chair before she gets tired.

YouTube Video


God is good!



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Location:Childrens Pl,St. Louis,United States

Tuesday, September 1, 2015

Day 2 Power Wheelchair Trial

Well, today's high point happened this morning when we were at the St Louis Children's Hospital practicing with the amazing OT, Melanie Wood. We took Emmalin outside to practice. When we got out there, Emmalin did great but she tired out a lot quicker than yesterday. Melanie explained to me that she has been working really hard to keep her head up as much as she has while driving the wheelchair (because Emmalin normally hangs her head a TON), and so Emmalins neck could actually be sore from working so hard yesterday. Just like yesterday, going right is A LOT easier for her to do than go straight, but Emmalin did actually go left a couple times today (which was exciting). At the end of the time, Emmalin was really tired. We told her that she had to drive the chair to me and she could get out (being able to get out of the chair is a very big motivation for her). It took her about 5 minutes and she had several times she went is circles a couple times between times she moved the chair straight, but SHE DID IT!! Emmalin drove her wheelchair to me so she could get out! It was amazing!! She was exhausted when got to me and I got her out as fast as I could (and that made her happy because she hates being strapped down in her wheelchair). I was SO proud of her!!

Melanie said we need to continue to give her space that she can explore in the wheelchair, and that we also need to work on teaching her to stop (because right now she doesn't seem to care about the stopping).

So later this afternoon / early evening we went down to the parking garage here in our hotel to get some more practice in...unfortunately Emmalin ended up having a really hard seizure right before we left to practice and so she didn't do well at all. Poor thing!

We are hoping for just as great or a morning tomorrow and hopefully a more successful afternoon tomorrow as well. We are SO grateful we have been given this amazing opportunity and looking forward to see what tomorrow will hold!

God is great!

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Monday, August 31, 2015

First video of day one with the power wheelchair

Ok, so we are getting ready to go practice again, but here is the first video of Emmalin in the power wheelchair. So far she is starting to get the hang of going straight and right, but left is still very hard. I will be excited to see the rest of the week holds!!

God is good!!

YouTube Video

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Sunday, August 30, 2015

Well, Emmalin and I made it to St Louis. Tomorrow she will start her power wheelchair trial. Honestly, I don't really know how this is going to go, but what I can say is that I am incredibly grateful for Emmalin to have the opportunity to try it! If all goes well, we will be here all week. Tomorrow is supposed to be all about figuring out how to get the wheelchair into my van and then getting Emmalin "fit" to the chair. I'll keep you posted!!

God is good!


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Friday, August 21, 2015

Let the adventures begin!

Well, it has been a VERY long time since I posted anything on our blog (sorry about that)! Emmalin has been doing really well lately and so we have decided to move forward with some exciting things. I figure now would be a good time to start writing in our blog again as we embark on each new adventure these next several months.

First on the agenda, today Emmalin and myself headed to Columbia to get her evaluated by a speech therapist, occupational therapist, and physical therapist. We did these evaluations so that Emmalin could officially go on the list to be able to do an intensive therapy session (for OT session and a separate PT session) here at therapy services at the children's hospital here in Columbia.

Back in 2011 Emmalin had the chance to do a PT intensive at the Kenny Rogers Childrens Center in Sikeston, MO. We saw SUCH amazing progress within that time, but because of how much an intensive therapy session costs, we have not been able to get Emmalin back. The Kenny Rogers Center has amazing equipment and amazing toys and equipment for individuals with vision impairments like Emmalin (which are hard to find sometimes).
Although the Therapy Services department in Columbia doesn't have all of the "fancy" toys, it is SIGNIFICANTLY cheaper and that is what has made it possible for us to get Emmalin on the waiting list. We are SO grateful because Emmalin needs these intensive a to try to help her gain back some of her head and trunk control.

For those of you that don't know what an intensive therapy session is...an intensive therapy session is 3 consecutive weeks. Each week it is Monday through Friday and it is 3 hours (in a row) each day. The idea is that you focus on 1 skill the entire intensive therapy session. By the consistency and repetition of practicing that skill for 3 weeks, it is supposed to allow a person to gain the amount of strength (progress) within those 3 weeks that would normally take 6 months to accomplish.

We have been told that tentatively Emmalin will be scheduled for her OT intensive in October and her PT intensive in March of next year. Like I said earlier, now that the evaluations have been done they will be calling us soon with our official dates. We can't wait!!

Our other major adventure that we will be doing in a couple weeks is something that we never thought was possible. Emmalin has been given the opportunity to trial a power wheelchair. Yes, I know this sounds crazy! Our OT at the St Louis children's hospital (in therapy Servies) approached me and asked if we would ever consider doing a power wheelchair trial because she thinks Emmalin would do well and that it would give her independence and mobility (which is huge for a person that has to depend on others for SO many things)! So the first week of September, Emmalin and I will be in St Louis to give her the opportunity to trial this power wheelchair. Honestly, we are not exactly sure how it's going to go, but we are grateful for Emmalin to have the opportunity to try it.
Oh and I forgot to mention that our OT has mentioned that Emmalin will be activating the power wheelchair with her her head...at least that's the first way we will attempt the trial. As the trial happens, I plan on posting the progress each day. So stay tuned ;)

Between these evaluations today, the power wheelchair trial, the 2 intensive therapy sessions,
and the upcoming holidays (and Emmalins birthday) it is DEFINITELY going to be busy!! Of course one of the main goals during all of this will be to keep Emmalin (and myself) healthy! We are excited for a of these amazing opportunities and look forward to all of the possibilities that have the potential of making Emmalin's life better!!

As all of these adventures unfold, I will keep you posted!

God is good!!






This is Emmalin in the hotel asleep here in Columbia. She did great today during the evaluations :)

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Location:Columbia, Missouri

Tuesday, March 10, 2015

Day 4 (Tuesday) of the hospital admission

Today was an interesting day....first of all we weren't able to do a MRI bc of Emmalins VNS, so we had to do a CT scan instead.  
Results:  they said that they couldn't see a lot of the liver because there was still a lot of white chalky stuff that was still in her stomach from the upper gi that she had yesterday.  They also said that they did not see any air in the portal vein (which is good).  Then they came back and said that, of what they could see the liver, it looked normal.  
They also did a bunch of labs today and everything came back normal but one (all the liver functions came back normal).  The one that was "off" does show that something is going on, but now we are back to trying to figure it out.  
We will be doing some biopsies tomorrow around 10 / 10:30.  They also are going to checking closer on if her felbatol (which is one of her seizure meds) has anything to do with it.  Dr. Weisenberg (Em's epilepsy specialist) will be back on Thursday and so we will be going over stuff with her then.

She also seems to be starting to feel a tiny bit better today, but now she seems to be getting a little bit of cold symptoms, so it looks like that upper respiratory virus that she had is trying to finally show itself in Emmalin.  Let's hope it stays away long enough to get the biopsies done!!

Also, today she did not puke.  She didn't have very much food (Pedialyte only on a continuous feed of 10mL's per hour), but keeping any of it down is better than yesterday!! Emmalin seemed to feel a little better in the afternoon , but you could definitely tell her tummy is still hurting her.

I feel like we took a step forward today and that's a great thing!! Hoping for a good night (fingers crossed).

God is good!

Emmalin and then Emmalin and Jarrad at the CT Scan today.




Day 3 of the Hospital Admission

So Monday was an interesting and exhausting day.  Emmalin acted like she didn't feel good all night (nausea wise) and her little tummy just kept rumbling.  We went for the upper GI.  She did great (as always)and we went back to the room.  She had not puked all day on Sunday by they had been giving her a nausea medicine to help with everything. But Yesterday (Monday - day 3), Emmalin needed up getting sick (from both ends) 2 different times.  But They were both after the upper GI and so I as grateful for that!! They also decided that they wanted an abdominal ultrasound done. So after getting her all cleaned up we headed down for that. The idea behind the ultra sound and the upper GI was to be looking for reasons she was doing the main underlined problem (the puking every time I would get her to full feeds and then her puking the day I helped her go to the bathroom).  

I guess I should back up and say that in addition to everything else they have also discovered that she has two different viruses going on, one is called metapneumovirus (hMPV- which is an upper repritory virus - a common cold- that Emmalin is showing no symptoms of oddly enough) and the second virus is the rotavirus ( which will cause vomiting and diarrhea).  The doctors think that the excessive puking and diarrhea that Emmalin has been having is caused by these two viruses (especially the rotavirus).  They said it should run its course in about 5 days or so.  But they do not think it is these viruses that are causing the underlining issue of her vomiting when she's back on full food only when I help her go to the bathroom (this issue has been going on since the middle of January and she has lost 6 pounds because of it).

Then in the abdominal ultrasound they discovered that there might be something wrong with her liver (which was VERY unexpected because all of her labs have come back just fine in that area).  They think that they saw 2 different things.  The first one was that they liver was bumpy (which is called fibrosis) and the second thing was that the saw air in the portal vein (which is called serosis).  Neither one of these things are good and so they are going to schedule an MRI for tomorrow to look at the liver to confirm that the ultrasound was right.  They will also be doing a bunch of different labs to check the liver function among other things. I forgot to mention that they also sent Emmalin down to have some X-rays done to make sure she didn't have any air in her abdomen (which is a really bad thing to have).  They found out that she didn't have air in there and so we were grateful for that news!!

Then in the evening Emmalin ended up puking 2 more times.  She didn't hold down any food yesterday (and it was just Pedialyte).    Things finally calmed down, and we got to go to sleep.  Her night was better than Sunday night and so I am incredibly grateful for that!!

All in all, it was a busy day with a very unexpected twist in it.  I'm exhausted!  But honestly, I know there are a lot of kids in this very hospital That are A LOT worse than Emmalin and so we are counting our blessings!! Tomorrow is a new day and we are hoping it will be better!! 


God is Good!

Oh and on a fun note, Emmalin had some ballons and candy delivered to her from our very dear friends Amy and Lexi today.  There is a gift shop here at children's called Small World Gift Shop and Amy ordered it from there.  Another fun thing that people can do for kids that are in the hospital here is send little email messages.  I don't know exactly what it's called, but I think that it's neat they have that option also!!


These are the balloons and candy Amy and Lexi sent Emmalin :)

Monday, March 9, 2015

GI Issues - Hospital Admission

Well, we made it one whole year without Emmalin being admitted into the hospital (which is a great accomplishment). But this past Saturday (March 7th), Emmalin was admitted to the St Louis Children's Hospital (SLCH) because she was throwing up every 30 minutes. Technically Emmalin was taken by ambulance to our local ER (they have us take an ambulance because they - her doctors - don't want her waiting in the ER waiting room). This was Emmalin's second time to be take an ambulance from our house. The first time was last March when she got the Rhinovirus (which is a common cold but when Emmalin gets it her pulse of drops and she has to be given oxygen for a little bit). This was also the second time that Emmalin was transported from the ER to the St. Louis Children's Hospital. Emmalin is transported to the Children's hospital in St. Louis because this is where all of her 11 specialists are, her special team called the PACT team, and the CDKL5 specialist (that also happens to be Emmalin's epilepsy specialist / neurologist. Emmalin is also transported up there (instead of being admitted locally) because both Jarrad and myself want Emmalin to be where they already know her and where they specialize in kids (especially complicated kids).

Anyway, so Emmalin actually has 2 different things going on (at least that is what they think). The first issue of her puking every thirty minutes they think is some type of virus. The second thing is an issue that has been going on since about the middle of January. So far she has lost 6 pounds because she can't seem to tolerate / keep down her food (which is just a special type of milk). We saw Emmalin's GI doctor up here in St. Louis on February 19th and she decided to change Emmalin's food to something that was broke down a little more than the food she was normally on in hopes that it would help her stomach clear it quicker. So Emmalin went from Pediasure 1.5 to Peptamen 1.0 with Fiber. Emmalin did great with the switch and had stopped puking for about 2 weeks and then this past Friday night she started puking again. Normally she only pukes 1 time. It was because of the fact that by 1am she started puking every thirty minutes that we ended up calling the GI on call around 5:30am. Emmalin had never done anything like this before, and we were worried that the "normal" puking twice a week had turned into something worse.

Today is Monday morning (before any doctors have been in), and Emmalin should be going for an Upper GI today and then depending on the results of that, they may be doing another type of test tomorrow that will require a very light sedation.

When we got in here Saturday Emmalin would vomit every 30 minutes (even though there was nothing in her stomach) until they gave her some nausea medicine. Yesterday she did not vomit, but came VERY close to it several times. She had a couple times she had a burst of energy and she played with a balloon but got the most part she just slept. She FINALLY peed yesterday evening after holding it for about 28 hours.

Last night she continued to pee but seemed to be nauseas and stirred a lot. Plus her seizures were up a little, which is one of the main ways her body tells us when something isn't right.

So, we will see how today goes. Once she gets done with the upper GI then we will be able to start Pedialyte back up again. I will update again tomorrow.


Oh, one last thing I want to mention is that my family is amazing! My mom, sister, and brother in law Jon came with me and Jarrad to St Louis with us Saturday and stayed until yesterday. My dad (because they all had to go back for work - including Jarrad) is now staying a couple days so I have someone to help grab me food (or so I can go get me something), so I can go and do some laundry, and just so I can have some company. I am SO blessed to have them all!!

God is Good!!


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Location:St. Louis Children's Hospital


Above is Emmalin last night (Sunday night) here at SLCH. 

Below is Emmalin in the ambulance on the way to St. Louis.  Sorry the picture is a little blurry, but I couldn't keep my hand still long enough to take a picture without us hitting a bunch of bumps.
Below is Aunt Jessica (my sister) and Emmalin while we were at our local ER Saturday morning.