Emmalin Age: 7.5

Emmalin Age: 7.5

Sunday, December 11, 2011

Hard Couple of Days With Seizures

This weekend has been great having my mom and sister here, but Emmalin has had a couple of REALLY tough (at least tough for us) seizure days (really afternoon/eveningish) the past couple of days.  I think she had around 6 or 7 "hard ones" within 11 hours yesterday and she had around 4 hard "ones" the day before that (right now, that is a lot for Emmalin).  And to top it all off, Emmalin started a "new" seizure type last night.  Unfortunately that happens with CDKL5 (new seizure types will just show up randomly).  I was hoping not to have to change any medications around until after the intensive was over, but I don't think that's possible now.  I will definitely be calling Dr. Weisenberg on Monday and figuring out what we need to increase next....sigh.  I HATE SEIZURES!!!

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