This blog is about Emmalin's struggles and triumphs living with the CDKL5 gene deficiency, early infantile epileptic encephalopathy. We will also blog a little about what challenges and joys we have had as her parents. God is SO good and we feel so blessed that He chose us to be Emmalin's parents! This is our story...
Emmalin Age: 7.5
Sunday, December 11, 2011
Day #10 - Intensive Therapy
Today didn't go as well as yesterday (Thursday - Day #9 was, by far, the best day of this week). She still worked REALLY hard!!! And she definitely LOVES that bubble column with this specific switch (that I'm trying to find - it's rectangle and angled) that allows her to turn it on and off herself. Even though you could tell that she was extremely tired, she still worked for about an hour at the bubble column and had some of her best for the day during that hour!!
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