Little Green Dress

Back in May we got the opportunity to wear a "little green dress" that is literally being sent around the world to every CDKL5 family.  This dress was originally one little girls dress that lives in the UK... Her mom decided that since it was one of the CDKL5 colors it would be a good dress to try to pass on... well, it started going from one person to the next and before you know it, they decided they wanted it to try to go to ever person with CDKL5...So the idea is just that!!  This little green dress is going to touch every single CDKL5 person (I say person because there are some adults) and by doing this, this little green dress unties us all.  If they are small enough to wear it, then they do... if they are too big for it, then they put it on a bear of some sort and take a picture with it.  The boys have a tie and then they put the dress on a bear.  So as I said, back in May we had the opportunity to get it and take pictures in it... there were about 29 families that had the dress before us.  It was an amazing experience and one that I am grateful we had the opportunity to have!!  GOD IS SO GOOD!!   Here were a couple of my favorite pictures that I took (with A LOT of help from one of our nurses):

She was NOT happy about the thing on her head or the fact that we were taking her picture!!