This blog is about Emmalin's struggles and triumphs living with the CDKL5 gene deficiency, early infantile epileptic encephalopathy. We will also blog a little about what challenges and joys we have had as her parents. God is SO good and we feel so blessed that He chose us to be Emmalin's parents!
This is our story...
Emmalin Age: 7.5
Tuesday, September 23, 2014
CRAZY CDKL5 FACT
Someone posted this the other day and I thought it was CRAZY!! Then Jarrad and I added up where Emmalin is (age 5) and it didn't take us long to realize that Emmalin was right on track for this...CRAZY (and really sad)!!! Thought I would share:
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