This blog is about Emmalin's struggles and triumphs living with the CDKL5 gene deficiency, early infantile epileptic encephalopathy. We will also blog a little about what challenges and joys we have had as her parents. God is SO good and we feel so blessed that He chose us to be Emmalin's parents!
This is our story...
Emmalin Age: 7.5
Friday, October 2, 2015
Journey of Hope Benefit on October 17th!!
Don't miss the benefit that my sister is having for Emmalin this month! Emmalin and I will be coming back from Columbia for it (and then going right back). I hope to see you there!
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