Today was an interesting day....first of all we weren't able to do a MRI bc of Emmalins VNS, so we had to do a CT scan instead.
Results: they said that they couldn't see a lot of the liver because there was still a lot of white chalky stuff that was still in her stomach from the upper gi that she had yesterday. They also said that they did not see any air in the portal vein (which is good). Then they came back and said that, of what they could see the liver, it looked normal.
They also did a bunch of labs today and everything came back normal but one (all the liver functions came back normal). The one that was "off" does show that something is going on, but now we are back to trying to figure it out.
We will be doing some biopsies tomorrow around 10 / 10:30. They also are going to checking closer on if her felbatol (which is one of her seizure meds) has anything to do with it. Dr. Weisenberg (Em's epilepsy specialist) will be back on Thursday and so we will be going over stuff with her then.
She also seems to be starting to feel a tiny bit better today, but now she seems to be getting a little bit of cold symptoms, so it looks like that upper respiratory virus that she had is trying to finally show itself in Emmalin. Let's hope it stays away long enough to get the biopsies done!!
Also, today she did not puke. She didn't have very much food (Pedialyte only on a continuous feed of 10mL's per hour), but keeping any of it down is better than yesterday!! Emmalin seemed to feel a little better in the afternoon , but you could definitely tell her tummy is still hurting her.
I feel like we took a step forward today and that's a great thing!! Hoping for a good night (fingers crossed).
God is good!
Emmalin and then Emmalin and Jarrad at the CT Scan today.
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