Hello everyone!! The International Foundation for CDKL5 Research (IFCR) is always looking for ways to raise money to help with research for CDKL5. With this money, they are exploring ways to help with seizure control and/or find a cure for CDKL5. They just put together a video that shows different people's stories that have CDKL5. Through this video, they are hoping to not only make more people aware of what CDKL5 is all about but also help them understand why raising funds for research to help find a cure is SO important.
I couldn't find a way to link this directly to this blog page, but if you click on the link (above in red), it will take you directly to the CDKL5 website where the video is on the main page. I hope that you will take a moment to check it out. It will give you a lot better understanding of Emmalin's journey (so far and in the future) with CDKL5.
God Bless You All!
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