This blog is about Emmalin's struggles and triumphs living with the CDKL5 gene deficiency, early infantile epileptic encephalopathy. We will also blog a little about what challenges and joys we have had as her parents. God is SO good and we feel so blessed that He chose us to be Emmalin's parents!
This is our story...
Emmalin Age: 7.5
Monday, June 13, 2011
Our CDKL5 Angels
Someone made this video of some of our CDKL5 angels (that's what us moms who have a child with CDKL5 call our kids). I thought the video turned out great and so I thought I would share it!
HI my name is Jenna and I came across your site. your daughter is an amazing, courageous, strong and determined fighter. She is a brave warrior, smilen champ and an inspirational hero. I was born with a rare life threatening disease. www.miraclechamp.webs.com
HI
ReplyDeletemy name is Jenna and I came across your site. your daughter is an amazing, courageous, strong and determined fighter. She is a brave warrior, smilen champ and an inspirational hero. I was born with a rare life threatening disease. www.miraclechamp.webs.com